Thursday, December 24, 2009

More for myself....

In so many ways I've wanted to get out pieces of paper and write thank yous' but it doesn't seem enough. I'm now seeing a neurological therapist for my post dramaic stress syndrom. I've had time(about a month and half) to really put pieces together of what really happened to me. So here I go from what I remember. (this is more for me, for me to remember, so I'm sorry if it's bad writing.)
I got sick, first with Phenumonia. I had a doctors note for me; not to go to school. It was hard because it's not just school it's university and things just aren't that simple. I was falling behind in my courses. Getting stressed on what to do and things I couldn't do. I went back to my doctor. I was getting better then something happened and that all changed. Mom and I, one day went to the Provo emerencgy room. I named all my symptoms right then and there. The doctor told me he knew what I had, H1N1, the swine flu. I didn't believe him. They took the 24 hr saline test and it came out positive(funny because a week earlier at my regular dr they swabbed my throat and all that jazz-negitive) I couldn't take any medication for my H1N1 because I had had it for too long.
I moved back home. Not for good just till I knocked this horrible influeniza.

Friday 23 Oct. 2009 - Dad, mom and I sat on the couches all day because all of us were sick, watching episodes of Gilmore Girls. It got dark and my breathing became harder. Mom took me down to the emerengy room. I didn't stay there for very long before my mom got a call from dr. curtis our dr and said that I was being moved to ICU. I didn't know what was going on or why my mother was crying. They put the IV in me. My brother in-laws, Lloyd and Marc came down and gave me a blessing. I could see Karen outside the glass windows with my mom...I feel asleep.
(nov. 2, 2009, monday)Waking up cold hearing voices...I kept asking my mom "was I in a car accident?" "no honey you are very sick" over and over agian this conversation lasted with the same question and the same answer. I couldn't walk by myself nor stand for to long without getting tired quickly and fast. I woke one morning in the hospital(the day after I really woke up) thinking "why am i here?" I wanted my mom. I wanted her there to comfort me and say it would be okay. I remember she said she would come but when....one minute seemed like an eternity to me. I picked up the phone. I have to dail 9 to get out but what do I do then....I'd think and think of the number remembering, there are double digits at the end....I'd start pushing buttons, then my mind couldn't remember what to do or what to push next. 9-367 or was it 362.....1388.....I couldn't remember.
A women came into my room. She did all these tests with me. Read me a story and then asked me to repeat it to her, "trying using the same words I did" I couldn't. She gave me a piece of paper with a drawing on it. "draw this image for me?" it was easy a triangle and a square. I'd put the pencil to the paper but I couldn't think of how to do it. I couldn't draw it. Day after day I was getting better and better. Stronger and stronger. I wanted to go home. I couldn't sleep at night in the hospital. One day while I was walking with one of my nurses it hit me that I had forgotten my good friends birthday, my niece birthday and halloween. It was getting dark at 5 in the afternoon.
Friday, Nov 6. 2009- Dr. alward said I could go home. It was truly a miracle how fast my mind was developing again. I still got tired easily walking but I could walk by myself for a bit before needing help. I was putting pieces of things in my mind together slowly.

To some it may seem that nothing happened to me. For me at times it feels that way. I know it did though. Was I suppose to go or stay? I know that because of all the prayers and fasting for me from people I love all over the world I am here today. Thank you!.....but it just saying that doesn't seem enough.... but thank you and bless you!!!

I might add to this with different memories that come back to me. Keep going Carolyn!

Monday, November 30, 2009

Howdy Ho Rangers!!!

Hey there friends-


It's been a while so I thought I'd update you with how I am doing. I started my "brain" therapy a few weeks ago. When I first started I would get major headaches but as I've progressed the headaches are calming down. I feel like my mind is a rubber-band that is being stretched. I've been in 3 different types of therapy and will be starting phyiscal therapy for my strength.(I have a wee bit hard time opening bottles, carrying heavy loads, etc). One therapy that I've been in is Speech therapy. This type of therapy really gave me headaches at first! I'm working on my listening and attention skills for when I return to school. I go through many different types of exercises, like: I have to listen for specific words that belong together and then ring a buzzer when they do belong together....it might sound easy but it isn't at all. I've progressed extremely fast and my speech therapist thinks I won't have much longer before he releases me. I still get headaches when I've done to much thinking and other activities.

My 2nd type of therapy is Occupational therapy. We've been working on my typing, writing, and multi-tasking skills. At first I was whizzing through all my quizes and activities. Then, Jessica and I found a weak spot. So we're working on being able to sustain my divided attention. She too thinks that she'll be able to discharge me as well. I started with a Neuropsychologist a week ago. It's been most helpful being able to talk out my different struggles. Dr. N/A is also helping me with releasing my mind so I can sleep. It's been hard for me to be patient with my body and self because I want to get back to my busy routine and schedule. All 3 of my therapists think taking a couple of online courses will really help me and I'll be able to go my own pace.

Friday, November 13, 2009

Things I Remember....tehe:D

It's funny when I talk to different people I remember different things...for the most part I don't remember most of the last month and halfof my life....it's quite strange. Reading to much now gives me a headache, my neck seems to be always stiff. This is what I remember.
1. I did ask for GRAPE soda tons but was satified with orange soda.
2. I don't remember how many times I asked anybody "what happened to me, was i in a car accident."
3. Waking up thinking that reality was a dream.
4. I remember random things at random times, like getting a speeding ticket on the freeway the Sunday before I got sick.
I'm slowly getting better. I appericiate everyones support for my family. With all my love(nad honey bunches of Oats)
-Carolyn-

Wednesday, November 11, 2009

How I am doing!

I thought I'd post again. Just to keep everyone updated on me health;) I'm getting better.....I'm still sick and have a hard time breathing. I don't really have any energy and get tired easily. So it's mostly just hanging around the house with my daddy.....some days I watch movies... my dad and I take walks to help me...and we have the same breathing machines so we keep eachother.....breathing....hahaha. My mum gets to hangout with us too....today for my 'walk' today my mom took me to wal-mart. that was fun:D I hope that this post comes out better then my last one....I'm still not very good at many things:D Again thank you for your prayers not just for me but my family:D

Tuesday, November 10, 2009

Do I Laugh or Cry? (I can't sleep so I'll Write)

Dear Friends (and you are all dear to me)

Its been a a few days since we posted so here is what happening.

Yesterday morning (Monday) I took Val to the hospital for outpatient procedure to remove the stint from his kidneys and 'blast' the kidney stones again so they can finally pass. The Dr. came out of surgery and said that his oxygen level dropped so low that they were having to give him more oxygen. (Between Carolyn and Val we have learned ALOT about the importance of oxygen levels to the body.) Val ended up being in recovery eight hours and the Dr. decided he should be admitted. Val and I thought it probably was because of his recent lung surgery (they had removed 1/3 of his right lung 3 weeks ago) and that it was just his body responding to this temporary jolting. But then the Dr. said it may be a blood clot. So he is in the hospital again. The Dr. made me laugh as he said I needed to be cloned so I could be at two places at once. Believe me I've felt the same way a good many times. Last night our dear Bishop and another dear Brother went and gave him a blessing and we know all will be well. I plan to pick him up after I get Carolyn to the Provo Hospital for speech and Occupational therapy this morning (Tuesday).

While at the hospital all day with Val, two dear friends took shifts to be with Carolyn while I was gone. Peggy came from 7am to noon and Mary came from noon to 5pm. They took her on 'walks' like they did in the hospital only this time outdoors. They also got her meals and made sure she did her breathing tubes etc. I did not have to worry about her at all as she was in good caring hands. Thank you dear friends.

Twice last week when I had to either take Val to a Dr.s appointment or be away from the hospital for a few hours another two friends stepped in to be there for me. Kathy, a friend of many years from Salt Lake drove down. As she entered Carolyns room she told me that she felt she was on 'sacred ground' like she felt when she entered the temple. It touched me deeply. And Wendy who came another time and was a major help in getting her out of her hospital bed and taking care of her physical needs. Thankyou sweet friends, thankyou. And thankyou to our precious daughters who have been there as a major strength to bouye us up and lift us helping to carry our burdens.

Carolyn is doing so well. She is improving more and more and getting stronger each day. They delivered a hospital bed to the house for her yesterday so that she can sleep at an angle and still be comfortable. After she got home last Friday her bed was brought downstairs thanks to the Talbots. But at night it was too flat (alot of coughing and discomfort) so she ended up sleeping in a recliner. Her neck and head really got twisted in the night. So during the day I would heat up this wonderful rice pack (thanks to the Greiners) and put it around her neck and it helps to relieve the neck discomfort. But now she is in the hospital bed and has slept well tonight. I've gotten up several times to check on her. I know Val is well at the hospital tonight too.

Thank you to the many who have brought meals, sent cards and well wishes. We feel of your love and compassion. My sincere gratitude for you all for your kind hearts and the goodness of your souls. May the Lords choicest blessings be yours. HE is there for all of us.

Nancy

Monday, November 9, 2009

what's going on...

It's been a few days so I thought I would fill everyone in on what is going on. Carolyn is doing great..."baby steps," but really starting to get her memory back. She is sleeping a little better at night and doing great with her breathing treatments/therapy. I have talked to her a couple times and this last time she seemed to be getting back to her old self. By the end of the conversation she had slowed down and I could tell that it had taken everything out of her.

This morning my Dad had surgery to break up the rest of his kidney stones so that they can start Chemo-therapy in the next couple weeks on the cancer they found 3 weeks ago. Carolyn can not be left alone so a friend came over to stay with her. We are still asking that we have no visitors because of all that is still going on between my Father and Carolyn. Please leave your posts of well wishes as my family loves to read them and it has really lifted Carolyn's spirits. She still doesn't grasp the seriousness of this illness that she has/had.

We were told last week before she left the hospital, that when she was taken to Utah Valley Regional Medical Center, that they were giving her a 20% chance of survival. Carolyn beat those odds. We truly believe it is because of all the love and support through the fasting and prayers of so many of you out there. Those we know, and those we don't know. Our family can't begin to thank each and every one of you in this small world! We love you all!

Until next time-

~Ashley

Saturday, November 7, 2009

"While I was Sleeping"

To answer a few quesitons before I give DEEPEST gratitiutde for all the prayers and fasting.

1. I "woke" up techincally on Monday....I remember being cold and hearing an Native American guys voice...I seriously thought I was dreaming.
2. I'll have to appologizigze for all the typo, etc....I have to learn re-learn kind of many things over again....like typing on keyboard, walking(earlier this week), the week and to write.....not for good but bring back to remembrance. I couldn't make a phone call on Tuesaday.....I'd just look at the phone and think some how you can get out but i don't know what to push....
3. I don't rememember a thing but telling my mom the night of the Oct 24th that I couldn't breathe.
4. How much she loved her fmaiy back VERY much back.

Technically, I've been home for less then 24 hrs. I spent the week in hospital re-learning how to walk again without assignts and ALWAYS ''nurse'' with all the time....it's called ''one on one''......I've tired reading all the posts, etc..... if any of really good rfiends would tell you first off...''Carolyn doesn't blog" and I don't or didn't. My mom had to show me how to read this.....hehehe.....I don't sleep well at night....and this has been on my mind since my mom and sister, Karen, told me about on Tuesday. It's been a long week for me and I kept asking my what happeneded? Was I in car accident or something.......THANK YOU for the ICU unit I am quite literally a miracle and this I do remember. When my mother came to collect this afternoon. She took me to the ICU for me to re-meet all phyiscal hand in bring home. It was actually quite a scary experience to be there and to see where my family would camp out, etc.....(Ashley totally loving the new nailpolish very classy clour! Hope you left it herer some at mom and dad's)
AND like to thank you each of you all your posts and memories of me, your constent prayers and fasts. I did cry....loads. I'm not the only one out there though....today I met a lady and I think her son or brother....she said to me "hey, I remember you" you werein that room...and then she pointed to ICU room. I told her I was miracle for being alive. I praeyd for her and family and MANY MANY other things too. It's nice to have not thimk "Did ever make a differeence and wonder about my own life like George Bailey(that makes me sound pyscho......) but people do wonderf if you do make a difereence.....and no matter whoare.....YOU DO!!! Not only that but Heavenly Father VERY aware EACH of us personally. He does answer. For eacho gyou have left an imprint on my heart and famileis.

From Val and Nancy:
Carolyn wrote this yesterday after she had been home from the hospital for a few hours. She begins outpatient therapy next week to help with the restoration of her speech and neurological skills. We are told this will take several weeks, but we thought you would enjoy her first attempt of writing a note of thanks to you.

Friday, November 6, 2009

She's Home! She's Home! She's Home!!!!!

Nancy Here-

Can you believe that! When the Doctor called about 10am and said she was doing great and I could come down and pick her up and bring her home I thought he was joking. I was on my way down to spend the day and evening with her. I had to turn around and go home and get her clothes.

As I drove to the hospital my heart was overflowing with gratitude for all the tender mercies of the Lord to Carolyn and our family. I cannot put into words the glorious feelings of my heart. The humility I feel, the love. I am overwhelmed with gratitude.

At the hospital we got her dressed and all her stuff loaded on a cart and instructions from the nurses. We then went down (her in a wheelchair) to ICU because the ICU Staff asked if when she left she would come say goodbye to them. When we walked through the doors and her nurse of many days Barb saw her she couldn't believe it. She said there was NO Way she could be going home that she only left the ICU on Tuesday. Other nurses who attended her came over, her wonderful Dr. came over and finally Phil. I cried when I saw Phil and they all had tears when they saw her. Carolyn was all smiles and so were they. I cried in gratitude and thanked them profusely for being the instruments in the Lord's hand to save her life. Today was a huge PAYDAY for them. NOT in monetary terms but to see their beautiful patient who was literally on deaths door, healthy enough to go home And they were such an intrical part of it. To see their faces as they looked at Carolyn was an amazing and humbling sight. I only wish I had taken a picture so that I could share it with you. It was one of the most beautifl scenes of my entire life. To see my daughter alive and well with the people who lovingly cared for her as if she were their own daughter. There are not words to describe it. (Here I am sobbing as I'm trying to write this and I can't find a tissue.) Her Dr. pushed her wheelchair over to a Rotobed in one of the ICU rooms who had a patient in it so she could see first hand this lifesaving bed. They briefly told her about it and of their many cares and concerns for her. They told her how they kept the room cold and windows open to help bring down her fever. And many, many other little incidents in her slow progression of getting well. Baby steps, yes babysteps. This is one of the happiest days of my life.

She is tired but is on her laptop reading her blog and the comments. I started her at the beginning. She is now as I write just learning about this great spiritual journey of her life.

The Next Few Weeks

We have emptied out everything in what I call the 'music room' here on the first floor of our house to make it a bedroom for Carolyn for the next few weeks. She is not to climb the stairs to her bedroom for two weeks. She has to be on the first floor. She is to get as much rest as she can.They want her to come back for speech and occupational therapy starting next week. And she has to have someone with her 24/7 for the next two weeks. She walks OK but still is very weak.She remembers yesterday but not before that or while she's been in the comatose state. She does remember me taking her to the American Fork Emergency Room 2 weeks ago, going into the ICU there and the blessing given to her by her brothers in law and that's pretty much it. She had and still has so much medication in her system that the Dr. says it will be awhile before it dissapates from her body. And she still has a cough which is good to get the phlem out of the lungs. She still has to breathe in these devices they sent home with her every two hours. This will help the lungs heal.

But She's Home, Alive and getting better still. We are so grateful to all of you for your faith and prayers for her and in our behalf. We are so grateful to a kind and loving Father, and his Son, Jesus Christ, our Saviour and Redeemer. This is a Glorious Day for us ALL.

Much, Much love to you all - family and all of you dear friends who have read the blog and those who have commented here, on facebook and emails. ALL OF YOU have now become part of our family.

From My heart,

Nancy

Thursday, November 5, 2009

November 5 (Evening) Update

Carolyn continues to get well. Today she walked more and farther. The physical therapists are pushing her to go as far as she can and then a little beyond. She walked about 600 feet today.

She is working with the respiratory therapists on her lung capacity. (However, the pneumonia is still there, but it is slowly disappearing.)

She also continues to recover her memory. Her speech is more coherent and she is far less mixed up.

She is eating a little more (as much as one can when they are eating hospital food!!!!).

I added to more pictures today. You can read what they are. Does she not look really good in the second picture down. The abrasion on the right side of her face is a result of being the roto_bed for those four days.

More tomorrow.

Val (and Nancy)

November 5 -- Update

Carolyn continues to improve. She has an IV in her again. This one puts a saline solution into her system so that she will not dehyderate. She continues, with the help of Physical therapist and reablilitation Dr., walk a little more each time they get her up.

Her sister, Karen, helped her with a shower and with washing her hair yesterday. This was a real boost to Carolyn.

When we talked with the nurse this morning we found that she had slept well last night. During the day she is mostly awake although there are times when she gets tired and will doze for a few minutes.
Nancy and I are waiting for the Dr. to call this morning. One of the questions we have relates to how the pneumonia that is still in her lungs is progressing (leaving) her system.

She is still very picky in her eating. This morning she had one half a slice to toast, a half of banana and most of a can of soda. (The soda is baffling, she really drinks it and she never drinks orange or grape--which is what she asked for).

Thanks, again for everything you are doing to help us through this.

Val (and Nancy)

Wednesday, November 4, 2009

She's Awake.....

Since my own family is suffering from H1N1 now, I went to a required district administrative meeting this morning and then decided to come home to take care of the family, but stopped to see Carolyn first.... I haven't seen her since she "woke up."

Every time I have seen her, she has been "asleep." I guess I've become accustomed to this because I wasn't sure what to expect, as it was hard to believe she was alert (relatively speaking) and awake. The first thing she said to me wasn't "hello," but, "You aren't mom...." In my sarcastic way I questioned her, "Really? Who am I?" She actually had to think about it.... It was fun messing with her mind a little, as she is still trying to figure things out, but she doesn't realize how GRATEFUL I am to see her alive and coming around slowly. She is more beautiful now than ever (if that is even possible).

The top 10 ways you KNOW Carolyn is coming around when.....

10. She is bored too death in the hospital and wants to know when she can get out.
9. She is proud that she got her oldest sister to subject herself to listening to Veggietale songs.
8. She realizes she wasn't in a car accident, but was really sick.
7. She laughs at corny jokes and sarcastic comments....including that she didn't know she was on a roto-bed (what my sisters have called, "Disney's $50K ride").
6. She wants "real" food, not hospital food.
5. She remembers how to use a cell phone without even thinking about it.
4. She asks for lotion to moisturize her toes.
3. She asks how many days until the next "Twilight" movie will be in the box office and had she missed the premiere.
2. She is starting to realize that so many people are not only thinking about her, but praying and fasting for her (I don't think that one has quite sank in yet...)
1. She realizes she is ALIVE!!!

Thank you so much for your prayers, fasting, and love. Our family is truly overwhelmed by the Spirit of hope and love we have felt in the last week and a half. God hears and answers prayers...Carolyn is a LIVING example of this!

~Heidi

November 4 Update

AS you know Carolyn has now been moved from the ICU (Intensive Care Unit) to aunit that is called the "Critical Care Unit". I think I called it something else in previous posts. In this unit a nurse has two or three patients instead of one (as in the ICU).

She is now at a point where she does not have tubes in her. In fact, she does not have any intervanous tubes going into her system. When they give her meds they have left the needle in her arm and give her to them through that needle.

Her doctor called us this morning before Nancy left and gave some more information on Carolyn. He said he was going to have a Dr. begin working with her who specializes in rehabilitation. (I did know there was such a specility.) This Dr. will define how she gets her strength and her motor skills back. He was also going to have some kind of a neuro Dr. begin working with her. This Dr. will help her with her memory and other things related to the mind as she continues to come out from under the sedation.

As she comes out from under the sedation some humorous things have happened. She said to her mother: "Please take me to my apartment". Nancy explained that this was not possible. She waited for a few minutes and asked if she could go to her apartment to get some things. Nancy asked her what she wanted from her apartment and she said she wanted some food. Nancy asked her what kind of food. She said "Pizza".

Two nurses took her for a walk yesterday. They went about 8-10 steps and then turned around and took her back to her bed. This is about how much strength that she has.

She is eating normal hospital food now when she will. For lunch yesterday the only thing she wanted was some jello and then she only ate about 2-3 bites. I am sure here taste buds have been effected by the anesthetic and it will be some time before she is really able to taste foods.

Again we appreciate all your prayers in her behalf. We are at a point now where there is going to be long long recovery time while she continues to get her strength and her memory back.

Thanks for everything.

Val (and Nancy)

She finally got her nails painted!

I’ve been meaning to post this for a couple days now, but have been busy with my own little kiddo’s and Halloween……

Originally started on October 29

I am sitting on the plane heading back to my family after a surreal week of being with Carolyn. I have had so many emotions run through me this week but the emotion that I can’t help but to feel the most is humble.

So, I'm going to start with humorous. Karen and I have wanted Carolyn's little toes to be painted and legs to be shaved since she has first gotten in here. Carolyn has always taken pride in how she looks. Just because she's in the ICU, doesn't mean we should stop caring about that. yesterday during one of her bath's I took advantage and shaved her legs. When I got done I looked at the nurse, then I looked and Carolyn and I said, "Carolyn you now have the smoothest legs on this side of the ICU!" The nurse started laughing and said, "I can guarantee they are the smoothest in the WHOLE ICU!" We just laughed and laughed.

Our Mother went with our father for his appointment as he had tumors removed from his lung a couple weeks ago. They are checking up on him to make sure he is healing well etc. I have had the priviledge of being here alone with carolyn. during that time I took advantage and PAINTED HER TOES!!! They look so beautiful. Now she's ready for the ICU beauty pageant :)

This journey has made me think. Carolyn and I had a rough childhood. We never really got along. Even when she was in High school and I had moved out, things were just really rocky. And then something happened. I remarried and she decided to prepare for a mission. I had never been more proud of her knowing of the decision that she had made to serve our Heavenly Father. My parents would wake up faithfully every Wednesday morning at 3am so that they could get online and catch her as she was having her P-Day and checking her emails. I got pregnant with my sweet little Drew and night became sleepless for me. So I decided I would try to catch her too. It was during that time that I got to know her heart and who she is; one of the most incredible women I know.

I couldn’t wait for the day for her to come home from her mission because I knew that things would be different. A little over a month and a half after she got home she came and stayed with me as I had been having complications with my pregnancy of my 3rd son, Ethan. For two weeks, this sweet sister of mine did everything that I couldn’t do. She did my laundry, made dinner, bathed my kids, cleaned my house and made sure that every need me or my family had was met. She never complained just did it. She showed me what true service was. Carolyn and I had the opportunity to talk and work out all of those years of childhood bickering. More than anything during those weeks that we were together our favorite thing to do was sit and watch old movies and eat bluebell ice cream. These are memories that I will always cherish, because that was when I discovered one of my best friends in the world.

I am so grateful for the prayers that have been given on her behalf and on behalf of our family.

Ashley

Tuesday, November 3, 2009

Random Acts of H1N1....

Family & Friends (whom I now consider my family)....

H1N1 seems so random in so many ways...why it affects who it does and not others, I don't quite understand. I am around germy kids all day and yet I have not received the fate of others (and nor do I hope to).... it has truly made me grateful for my blessings.

As I continually receive emails from friends from throughout my life of different religious denomications, I am touched by the incredible faith of so many people, regardless of religion. It has been such a testament that their are truly many people today, who do love and believe in God, who knows each of us so well. People who may not even know Carolyn or my family and yet, they have faith and desire for others to be helped and protected. Watching society, it seems we are constantly reminded by how people act around us that there are so many that don't believe in a God, but I am truly humbled by how many do and are so willing to give of themselves spiritually, whether in the time of another's need or even for the sake of comforting one another.

Shaun (my husband) is progressing... the kids are getting better slowly. We love and thank each of you for your faith and kindness, not just for our little family, but for my beautiful sister, Carolyn. Know that you have touched the lives of each member in our family. We are so VERY grateful for all you do!!!!

Know that each and every one of you are in our thoughts and prayers. We love you!

Sincerely,

Heidi

November 3 (Noon), Update

Carolyn is slowly coming out of the coma, although she does not remember very much. She asked her mother and the nurse several times yesterday if she had been in automobile accident. When Nancy explained that she had the flu she can not remember anything about going to emergency or what happened after that.

She did not sleep well last evening. Her nurse told me that she seemed really agitated, confused and frighened. (This is apparently normal behavior as one comes out of a medically induced coma. Her temperature went down and has stayed down for the last two days.

The nurses aids helped her get out of bed yesterday afternoon and held her as she walked four or five steps. This morning they took out the tube that was in her nose (this was a feeding tube). At this point she does not have any tubes going into her body. She sat up and had soft foods for breakfast.

A couple of hours ago she was moved from the intensive care unit to the intermediate care unit (I think that is what they call it.) We have no idea at this point how long she will be in this unit of the hospital nor do we know what they will expect from from her in terms of gaining strength. Also we have no idea what will enable her to be moved from this unit to the rehabilitation unit. I will report more on this as I learn about it.

All are good signs and she continues to make progress. She is still a very sick girl.

Thanks again for your faith and prayers.

Val and Nancy

When It Rains It Pours

Nancy here-

Last night our daughter Heidi called and she had taken Shaun down to ‘Urgent Care.’ He had the chills all day yesterday and stayed home from work. Good thing because he tested positive for the H1N1 flu and is in the contagious stage. Shaun has written several posts here on the blog and was down at the hospital on Halloween Night reading and singing to Carolyn so I could be home with Val to help Val. Shaun is a very kind, gentle giant of a man who truly exemplifies being a desciple of Christ. We are just sick that he has gotten this. We hope and pray that he doesn’t get a secondary infection like pneumonia. We don’t want him in the same state as Carolyn. PLEASE include Shaun in your prayers. I KNOW the Lord hears and answers prayers. I have had a testimony of this since I was a small child. And I KNOW He has heard and answered all of yours and our prayers concerning our precious daughter Carolyn. She has been miracuriously blessed from these prayers. And the hospital staff has literally been an instrument in His hands to help make her well.

There are others who have this dreaded disease with complications. imichael.org has commented on our blog that his father was just put in the rotobed and too is deathly ill. I don’t know who he is but PLEASE pray for this man’s father too. Also there are two more patients in ICU that our on the rotobed. One is a husband to a wonderful lady who we met in the ICU lounge lobby. Debbie was by herself and joined our ‘camp’ the first several days that our whole family was waiting worried sick for Carolyn. Debbie’s husband had been in the rotobed 8 days and then they took him out. Well another week has gone by and he just isn’t making it on his own so they just put him back in it yesterday. They question if he will make it. My heart goes out to Debbie. She doesn’t have the wonderful support system like we have. PLEASE remember him too in your prayers.

As most of our family (accept two at a time in with Carolyn) sat in that special almost sacred ICU lounge those first few days, there were several other families also there fearful for their ICU’ed love ones. We all became instant friends as we shared our stories, fears and hope and empathizing with each other. All praying and hoping beyond hope for positive outcomes. I know the Savior walks the halls of these hospitals giving sustenance to each and every patient and their families for he loves them all as he loves us. How GRATEFUL I am for Him. I once again reiterate my testimony that HE LIVES, yes I KNOW THAT OUR REDEMEER LIVES.

And I say this in his Sacred Name, Jesus Christ, Amen.

Our love and gratitude to you all.

Nancy

Monday, November 2, 2009

My afternoon with Carolyn..

It was AMAZING!! Honestly, one of the most beautiful sites I have ever seen.
I walked in & her eyes were open, but close as quickly as they open. SHE HAS SUCH BEAUTIFUL EYES!! I know my dad already mentioned, but she speaks in a VERY quiet whisper & is very difficult to understand when she does get words out, usually just one or two words, but not really sentences. We have had to ask her to repeat herself, over & over again. I can tell she is frustrated. She doesn't know where she is. She will ask & we will tell her, but with in a few minutes she asks us again. She tries to pull out her tubes & we have to gently move her hand away from them. Each time explaining why she needs to leave them alone & not touch them. She does this a lot. She is still heavily medicated.
On one side of her cheek, it looks like some tape removed a bit of the skin & that is healing. When they had her in the special bed, laying on her face, they explained that she would likely have severe bruising because of the pressure. I think with time it will heal nicely.
I told her that she has a blog where her friends & family were watching her progress. I tried to explain that she has had over 8,000 hits on her blog. She whispered, "I don't blog." She didn't understand. We can't WAIT until she's awake & coherent enough to understand the blog & read all of your messages of hope & love. Like a child on Christmas morning, I keep trying to imagine what she will do when she reads them all. You all have given her such gifts in words & prayers.
When she looked at me, some of the time I felt like she was looking in my eyes, other times it was like a glassy haze over her eyes. She dozes in & out, mostly out, but we celebrate the "in" times.
I got to help the nurse wash her hair. They haven't been able to wash it since she was hospitalized 10 days ago....I think she felt A LOT better just from having her hair washed. Although it was really hard to do with her just sitting there, & not in a sink or tub. She was soaked by the time we were done, and very tired.
She asked for some grape soda...I don't know where that came from, but after a swallowing test, they said she could have something to drink by mouth. They only had orange, she ended up only taking 2 tiny sips.
To me, the afternoon was a miracle. She has made so much progress, I am so thankful!
I personally can't thank everyone enough for your fasting & prayers in Carolyn's behalf, but also Mom & Dads. I have seen my parents lifted though your faith. There were several times while I was with Carolyn when she was in her coma, that I felt the angels that attended her. She has not been on this journey alone.
Love & thanks to all,
Karen

November 2, Update

Today has been a good day. Nancy explained that they took out the tube that was in her throat. She tries to talk but she can only whisper. She does not remember anything that has happened. In fact she will ask us a question and then a few minutes later she will ask the same questions again. This is okay, this is just one of the baby steps. The therapists (two holding her up) had her out of bed today and helped her walk a few steps. We are so excited about the progress she is making.

She will go from the Intensive Care Unit to an Intermediate Care Unit and from there she will be taken to a Rehabilitation Unit. We have been told she will moved to the Intermediate Care Unit in the next few days.

It is interesting that this major progress happened within hours after all who desired had fasted and prayed for her. This is a great testimony to me of the tender mercys of a loving Heavenly Father. I am convinced that to this point (and I am sure we will continue to be) Carolyn, Nancy, myself and our family have been carried on the shoulders of the Savior through the marvelous enabling powers of the atonement. Lastly we are convinced that the hospital staff have been the recipients of the inspiration powers from Heaven.

We love all of you are grateful for all you have done and are doing to bless Carolyn.

Val and Nancy

MAJOR BREAK THROUGH!!!!!

Monday, November 02, 2009 AM

From Nancy

I was just finishing writing this and the nurse called. They JUST REMOVED THE HUGE TUBE DOWN HER THROAT that helped her breathe. When she tries to talk it only comes out as a whisper. The FIRST thing she asked for was some small crushed ice. Her room is no longer considered quarantined so we will not have to put on gowns, gloves and masks.

We appreciate your comments SO MUCH and Carolyn will TREASURE them when she is through all of this. Your comments to her here on this blog mean so much as I read them to her. She is now awake enough to actually listen and understand. And they will mean so much to her when she’s finally well. It’s like you have personally visited without actually being there.

Someone asked if a group could visit Carolyn and unfortunately she is still entirely too sick to have ‘visitors.’ Hopefully soon (in the next few days) she will be out of ICU. She’ll then go into ‘Immediate Care’ but then it will be questionable too. Believe me when she IS ready to have visitors we will let you all know. But it won’t be for awhile. But thank you for your support I know this will mean a lot to Carolyn. Also in ICU only immediate family is allowed and occasionally her Bishop.

Carolyn still has tubes down her throat plus others out her nose plus multiple lines pumping medicine into her arms. They took the huge port out of her neck a few days ago and put them all in her arms.

When Val says she ‘sits up’ it means that the bed is at a slightly higher angle than normal. But it’s not like what the rest of us do normally like sitting up in a chair.

She tries to smile a bit …not like a big huge smile but just a little as these tubes prevent her from moving her lips. And she can slightly turn her head to say no or yes. Her eyes, her beautiful eyes tell it all. The physical therapist comes in twice a day and gets her arms and legs moving a bit. He has her ‘push’ against his hand or arm with her foot or hands and she seems to be doing better at it each day.

Her lungs are still inflamed and full of pneumonia. With that said she’s still slowly improving.


How GRATEFUL we are to you all. THANK YOU, THANK YOU, THANK YOU from our hearts for your prayers, love and concern not only for Carolyn but our family as well. It has meant so much to all of us.

Much, much love to you ALL,

Nancy

Sunday, November 1, 2009

Sunday, November 1 Update (Noon)

I apologize for not getting this post up sooner -- I overdid it yesterday myself and I had trouble getting up this morning. This was despite the fact that I fully intended on going to Sacrament Meeting today.

Carolyn is now sitting up more and she is more alert. Her x-rays showed a little improvement. The nurse told me this is the last thing that will begin to improve. Again, I need to be patient. The lab results from her last culture continues to look good. She is still fighting a temperature.

Nancy is at the hospital and Carolyn is sleeping soundly. The nurse gave me some good news and some bad new -- the bad news there are four patients in the Intensive Care Unit that are really sick with the H1N1 flu and Carolyn is the one of them -- the good news is that of the four she is the healthiest.

Val and Nancy

Saturday, October 31, 2009

Halloween Night

I had the privelege of spending this evening with Carolyn. I am sure Carolyn would much rather have been at a halloween party dressed up as one of the characters from twilight, but we will have to wait for that until next year.I was glad because it saved me from going back and forth to the door handing out candy to the trick-o-treaters. Earlier today Heidi and I bought a book to leave in Carolyn's room so that it can be read to her. I don't know about Carolyn, but the rest of us were getting tired of hearing the Vegitales CD. The book is "The Undaunted" which I knew when we bought the book was the story of the pioneer saints sent to settle the southeastern part of Utah. The part I didn't know is that the story starts out in England in Yorkshire, telling the story of a coal miner in the 1860's. The book is written to imitate his strong accent, which I am sure I was absolutely killing, but I was doing my best. Carolyn was somewhat restless, so I am not sure if she was getting tired of my reading, or if she was just laughing inside because of the terrible job I was doing with the Yorkish accent, which the book makes out to be a very strong accent. So not wanting to cause her any reason to be stressed out I put the book aside and instead starting singiing some Hymns. She seemed to enjoy this more and was much more calm. Although it may have also had something to do with the medication that the nurse had given her. But I will just keep on telling myself that it was my awesome voice hat did the trick. Thanks again for all of the prayers that are being offered in Carolyn's behalf, it is making a world of difference for her. All of our best.

Shaun, the big brother in law.

Saturday, October 31 (PM) Update

Since tonight is Halloween and we have children coming to the door, I will be brief. Her vital statistics are the same (temperature remains elevated). The pneumonia is leaving her body very very slowly. We had (in my view) a break through today. She was alert most of the afternoon and was lifting her legs and arms. She responded well of the physical therapist. He is working with her so her muscles do not tie up. In a few days they will want to have try to walk so her muscles will need to be in good shape.

When Nancy went to leave at 5PM she grabbed her had and held tight. Like she was saying, "Please do not go". The hospital clears the ICU rooms of everyone from 5-7 to do change of shift things. Our son-in-law Shaun went down to be with her tonight -- Nancy is giving treats out to the kids who come to our door.

I would say we were excited with her progress this afternoon.

Val and Nancy

Saturday, October 31 (Update)

This morning I have visited with the nurse and the Doctor who is on call at the hospital. The message I received from them is not much different than what I have been giving you the past three days. She is not losing ground, but she is not gaining ground very fast either. The Dr. summarized it when he suggested that she has "hit a plateau".

Given this news and having faith that Christ can help her move from the plateau I have asked my family to fast again tomorrow for her. Should you be so inclined we would love to have you join us.

I am grateful for the restored Gospel that provides so much opportunity to help us "carry one anothers burdens". Thanks for your love, concern and prayers in Caroly's behalf.

Val

The Rest of the Story

Our dear family and friends,

We cannot begin to thank you enough for your faith and prayers for our precious daughter Carolyn and for our family. This is Nancy, her mother, writing to you all. There is much more going on in our family that I wanted to share so that you can get the whole picture.

A month ago my husband (Val) was in terrible pain and from where the pain was we thought it might be kidney stones, so I took him to the emergency room. They did a CT Scan and yes it was kidney stones. The Dr. showed me the Scan and said he has several large ones and several small stones but THEN said “look up here at the right lung.” I couldn’t believe what I saw, but a large mass in the lung. Val was admitted to the hospital right then. The next day the Urologist ‘blasted’ the stones and put in a stint up into his kidney. Then, later in the day the lung specialist had a biopsy done of the ‘mass.’ It was a malignant tumor bigger than a golf ball. Meanwhile the largest kidney stones were broken up but not into small enough pieces for them to pass. So the ‘blasting’ will have to be done again. But both the Urologist and the Lung specialist felt that the lung tumor needed to be dealt with before any more of the blasting of the kidney stones could be done. So…two weeks ago Val had lung surgery where they removed 1/3 of his right lung with the tumor in it plus 13 lymph nodes around the lung. Unfortunately they found more cancer in two of the lymph nodes so now he will have to have Chemotherapy. But before Chemo can occur Val has to go back to the hospital next week and have the kidney stones blasted again and the stint removed. Then two weeks later he starts the Chemo.

On Monday, the day before I brought Val home from the hospital (the very hospital Carolyn is in now) Carolyn was diagnosed with H1N1. And I had come down with a bad cold. So to be able to bring Val back to our home both Carolyn and I both had to wear surgical masks and I had to sterilize everything. Val could NOT get this horrible disease especially because of his recent lung surgery. It would literally take his life. This was now Tuesday. A few days later –Friday- is when Carolyn became so bad that I took her to the emergency room and as you as you may be following the blog for Carolyn you know the rest of the story concerning Carolyn and how deathly ill she is.

Carolyn’s Doctors and Nurses do not want Val at the hospital because there are 10 patients besides Carolyn in the ICU with the H1N1 and he is so susceptible. And it has upset him terribly. He has gone down to the hospital anyway 3 times and for only a few minutes because he could not stand being away. So… he talks to the doctors and nurses via the phone to get the updates. I also put my cell phone up to Carolyn’s ear so he could talk to her even in her unconscious state. Val felt he could do his part by writing to keep everyone updated on this blog and making and receiving necessary phone calls. He is at home, most of the time by himself, because I am down with Carolyn. Val is doing really well though. His incisions are healing well and he is feeling good and is in good spirits. We feel the Lord has blessed him immeasureably to get through all of this thanks to the Faith and Prayers of so many. And it is those same prayers that are helping to keep Carolyn alive and slowly, ever so slowly improving.

Next week Val will be in one hospital (American Fork) and Carolyn in another (Utah Valley-in Provo.) Thanks to my daughters who are here and so many dear friends who have offered their help to be with Carolyn, both Val and Carolyn will be covered and taken care of in and outside of the hospital either by me or these wonderful angels of mercy. Because for me that is what they are ‘Angels of Mercy.’ Our Lord and Savior, Jesus Christ, is literally carrying us, comforting us and giving us strength and yes peace through this most difficult time. How GRATEFUL I am for His atoning sacrifice in our behalf. He IS our Redeemer and Savior and Son of our loving, gracious Heavenly Father. I leave this testimony with you and my sincere gratitude for all of you and your fasting, faith and prayers. And I say this in His Holy Name, Jesus Christ, Amen.

Much, Much love to you all,

Nancy

Friday, October 30, 2009

Friday, October 30 (PM) Update

As I talked with the nurse this afternoon, we talked about those things I have been sharing with you. Carolyn contines to make small gains. The staff continues to carefully remove her from the anesthetice (this process will take about another 72 hours.) She is going to be really frightened. This is because as she wakes up she will be disoriented and frightened because of tubes in her nose and throat and off of the other things she has attached to her body. How she responds to this very foreign environment will be extremely critical.

Her vitals continue to be stable. The first results from the culture that was taken last night is showing that there is still no sign of bacteria. She continues to go in and out of sleep. She appears to be recognizing people and responding to them. Her temperature contines to go up and down. (This tells the medical people that she is still under the influence of the H1N1 flu.

As I thought about what she will be experiencing the next 2-3 days, I could not help but think of the atonement of the Lord, Jesus Christ. The atonement has not only a redemptive side (that is the ability to allow us to over come sin through repentance), but it also has an enabling side. That is the Savior can literally enable us beyond ourselves at times like this and help us as we suffer any pain or sickness. The Prophet Alma in the Book of Mormon taught:

11 And he shall go forth, suffering pains and afflictions and temptations of every kind; and this that the word might be fulfilled which saith he will take upon him the pains and the sicknesses of his people. (Alma 7:11)

I am convinced Carolyn is going to need this side of the atonement to navigate the next several days. There are few young women as pure as she is and as worthy of this blessing as she is. She will also need all of our faith and prayers. I believe the Savior is caring her on his shoulders and that he will continue over the trying days.

I am grateful to have an understanding of the Savior's atonement and I get great strength from what I know about the knowledge that has come to us through the restoration of His Gospel to the earth about Him and His atonement. I know Carolyn has this same faith -- that is why she went on her mission. It is my prayer that all of us will be brought closer to the Lord, Jesus Christ and understand more completely His atonement through this experience.

I love you and Nancy and I pray for you daily.

Val and Nancy

Carolyn's middle name


Some of you may be wondering about Carolyn's middle name "Jerusha". Carolyn's middle name is after Jerusha Barden Smith, the first wife and true love of Patriarch Hyrum Smith. She was born on February 15, 1805 (great birthday by the way). Jerusha and Hyrum were married on November 2, 1826 in Manchester, New York. Jerusha died on October 13, 1837 following the birth of their sixth child, Sarah.

Friday, October 30 (AM) Update

It is 5:00 AM and I just spoke with the nurse before they began their shift change. If I waited any later I would talking to a nurse who had just come on duty and I wanted information from a nurse who had been with for Carolyn for a few hours -- hence the early morning hour.

Here is the report the nurse gave me this morning:

Her vital signs remain stable, except for the temperature and it went up again in the night. They were able to get it under control with Tylenol. Additionally, they (the medical staff caring for her) have taken a culture and are sending it to lab -- this is precautionary to insure that nothing has happened since they took the last culture several days ago.

She had a goods night rest.

At about 3:00 AM they observed that she was beginning to nod in a way that indicated she is waking up. They have changed the sedation medication to a more mild form.

She is now able to squeeze the fingers of the nurse and appears to be understanding them better as they talk with her.

It is now 11:30 AM and I just returned from running some errands. Since the information above, Carolyn was allowed to sit up for about 30 minutes and she was asleep for most of that time. She now better responding to commands like wiggle your toes, raise your eyebrows, squeeze my finger. She became exhausted when they asked her to raise her arm, although she accomplished the task. The IV's (intravenous tubes) have been in her neck and they are in the process of moving them to her arm. I will more tonight about the status of the x-ray for today. Again, these are small things, but they are moving in the positive direction.

We love each of your for your prayers and support.

Val and Nancy

Thursday, October 29, 2009

Thursday, October 29 (PM) Update

During the day today the following ever so small (baby steps, millimeter progress) have occurred.

Carolyn has been taken off of the medication that has kept her in the coma. And her pain is being controlled only by the pain medication. Phil, her respiratory therapist asked her to node if she heard him. She did this. He put his fingers in her hands and asked her to squeeze his fingers. She could not do this. He reminded me that we look for small gains. When Nancy took her hand and told her she was there Carolyn opened her eyes and tears flowed from her eyes and down her cheeks. Then closed her eyes again like she was out. Nancy just stroked her head and reassured her of our love and the love and prayers of so many. Both Nancy and Ashley wept with this recognition from her.

Phil also said the staff takes their queues from the patients about where they are and what the staff should do next. I am so grateful that we have the staff we do. They are really skilled and have enough experience to know how to read the little ques so they can keep the patient moving ever so slowly forward. We have come to love and appreciate them.

Her vital signs are still stable, except the slightly elevated temperature. They tell us they are 'cautiously optimistic.' She is still very, very sick and is as yet 'not out of the woods.'

We are grateful for your support. We love you and pray for you.

Val and Nancy

Thursday, Oct. 29 (AM) Update

Yesterday I reported that the nurse had her sitting up. She was able to stay in that condition for about 1/2 hour. She had some gagging and coughing. When this occurs they ever so slightly increase her sedation.

I have talked with the nurse twice this morning. Here is what I have learned from the nurse:
* Her vital signs remain stable.
* She has a slightly elevated fever and they working to get that under control.
* She slept soundly through the night.
* They are slowly lowering the sedation.
* The doctor is satisfied with her progress.
* The x-ray today showed slightly more clearing of the pneumonia from her lungs.

Again, thanks to everyone for you faith and prayers.

Nancy and her sister Ashley are just getting ready to go to the hospital. Ashley will be flying back home to Arizona this afternoon. Remember (and the nurses constantly remind us of this) we are measuring progress in baby steps (millimeters). I say this more for myself than anyone else, because I would like to see faster, greater progress. No doubt my personal refinement out of this trial is the development of greater patience.

We love all of you and pray for you.

Val and Nancy
As I looked at Carolyn for the first time in her ICU bed on Saturday & the doctors said they didn’t know if she would make it, I thought, has my life been THAT busy, that I haven’t taken the time lately, to stop & tell Carolyn how much I love her. I found my self feeling an enormous sense of sadness, it had been a long time since I’ve told her that, that I’m proud of who she has become & ALL that she is. I promised myself, then & there, that if the Lord would spare her life, I would never let another day pass, that I didn’t express the words of my heart to her & the others in my life that have made all the difference. I woke up in the middle of the night last night, my mind flooded with these thoughts & words. I’m eternally thankful that it looks like the Lord is going to give me another chance to say the words & thoughts of my heart to her & my other loved ones.
As she has been on respiratory life support, I’ve found myself holding my children a little longer,
& embracing my husband a little bit tighter. I wrote this poem as a reminder to myself of the shortness of time.


Today...
Have I said the words I need to say,
Or do I save them for another day.
Have I said the words I want to say
Or save them for after work & play.

As I think of this soul, did I stop & pick up
The phone, or write a simple note
Or did I say to the Lord,” I’m tired now,
I can barely stay a float”

Tomorrow Lord, I’ll speak those words
The thoughts of my deepest heart
But the sun comes up
And sets again…
waiting for the next day to start.

So time goes on, & on again
From hours, to days to years.
Have I said the words YET,
I needed to say, or simply
saved them for my own ears.

This soul is,
My sister, brother, mother & father,
my child, my spouse,
friends from years past.
Yet I still stay silent
a new day is here
And still run to & fro far too fast

Then the phone rings,

I listen
who could it be?
The news I never thought
I would hear,
“I’m sorry my friend to tell
you the news, but this soul
Is no longer here.

Where did time go?
I say to myself, there are still things
I wanted to say, I wanted to tell you
“I love you” my friend,
I should have said them all
yesterday.

Today IS the day,
The moment is now,
To embrace those words of the heart
I will say these words today Dear Lord,
before the next days start.

I’ll say those words
of gratitude, of kindness & of love,
I will stop what I’m doing
This moment and say
the words of my heart, all of love.
I love you Carolyn.


By: Karen Wilbert
October 27, 2009

Wednesday, October 28, 2009

Thank you for your Strength & Support

Dear Family & Friends,

I went back to work today and EVERYONE asked how Carolyn was and wanted to know the latest. I am so humbled and full of gratitude for each of YOU. I have NEVER felt such an outpouring of love and faith in my life. It has been such a testament of what a wonderful young lady (relatively speaking) Carolyn is to everyone. Her whimsical and simple ways are an inspiration to us all.

At this time, I want to thank each of YOU for buoying my spirits each day~as selfish as that may sound. It was hard not being able to see Carolyn and be with her today, but just reading each of your posts and comments made my day better.... you made a difference in my life today and I just wanted to thank you because I know you made a difference in Carolyn's, as well!!!!

Though I don't know most of you...I LOVE you and appreciate you...being brothers and sisters in the Gospel of Jesus Christ is a wonderful feeling!!!

Our family is praying for each of you and your lives that you may have the same blessings in your lives, as we have truly been blessed with, especially in the last week!

~Heidi

Wednesday (Evening) -- October 28

Since this morning, Carolyn has made some small (millimeter) in size gains. Again Nancy and I have learned that millimeter is good as we face Carolyn's recovery.

Her respirtory therapist reminded Nancy this afternoon that Carolyn is extremely sick and her recovery will take a long time. He also said she is slowly making progress with an emphasis on slowly.

Now a couple millimeter size steps -- when Nancy and Carolyn's sister,Ashley went into her room, Ashley spoke to the nurse and they saw Caroly open her eyes momentarily. Later on Nancy was talking on the phone about what we were going to do for Thanksgiving and she raised her arm. Nancy told me it was clear she had heard and was responding to this. (We don't know if she was agreeing or disagreeing with what we plan on doing.

Later this afternoon they turned her bed into a reclining chair and had her in a sitting position. I do not have any more information than this. I will report more tomorrow.

Her vital statistics remained constant today. Although for a time her temperature was elevated a little.

Again we thank all of you for your faith and prayers and we pray for you.

Val and Nancy

Wednesday, October 28, Update

Nancy and I spent some time on the telephone a few minutes ago getting an update from the nurse. Here is what we know this morning -- Carolyn had a good restful night and all of her vital signs remain constant. This is all positive. We are learning that small gains are very important and the restful night was a small gain.

Today they will begin to bring her out of the medically induced coma. This will be done slowly and her nurse and respiratory therapist will monitor how she behaves to the tubes that are still in her throat.

I apologize for some bad information in the post yesterday late afternoon. I said one of the next steps was to get her up and walking. When the nurse told me "get her up" I assumed that she meant -- out of bed and walking when in reality she meant have her sit up. The bed she is in now can be turned into a reclining chair. She will not be leaving her bed, but she will be put in a position where she is sitting upright. This activity will be monitored by how much she coughs. At this point too much coughing is not good.

Again, everyone thanks for your love and concern. As a family we are convinced that all of your faith and prayers in her behalf is one of reasons Carolyn continues to get better. Not to mention that she is being cared for by world-class medical people using world-class methods and technologies.

We love all of you and pray for you.

Val and Nancy

Tuesday, October 27, 2009

Tuesday, October 27 (Early Evening) Update on Carolyn’s Condition

This morning I reported that Carolyn had been on her back three times for over an hour. The last time she was on her back they left her there to see if her vital signs would be affected. At about 1:00 PM we found out that since she had been on her back for six hours with no change in her vitals the Dr. had decided she was a point where she could be removed from the Robo-bed. So at 2:00PM she was removed from life support bed.

I asked her nurse if she was “out of the woods” and she responded to me: “Val, it would be better to say that we have turned a corner." Later I hugged Carolyn’s respiratory therapist and he said to me that he thought we could finally see a light at the end of the tunnel.

It is now 8:00 PM and I just talked to Nancy who is still with her and her vitals signs are still stable.

The plan at this point is to keep her in the coma until sometime tomorrow and then they will bring her slowly out of it. About four hours after is out of the coma they will get her up and have her begin walking – slowly and not very far an first. This will help her lungs heal themselves and help her begin to gain her strength back.

We have been told this will be a long long process because her bodily strength has been almost totally depleted.

Again we love all of you and thank you again for your faith and prayers in her behalf. As a family, we are extremely grateful for our understanding of the restored Gospel of Christ. It has been our faith in the Savior’s plan of happiness and in the atonement of Christ that has carried us and will continue to carry us as we move into the future. It has been your faith in God and in prayer that has inspired many of you to join us in prayer for Carolyn – for this we love you and pray for you.

More tomorrow.

Val and Nancy

Prayers are being answered...

I just want to give a quick update about how Carolyn is doing. My Dad called the hospital around 1:00pm today to See how everything was going. Gena, the nurse told him that she had been on her back for 7 hours and stayed stable with her oxygen levels. So.....druM roLL PLeAse.....They were taking her off the special bed and putting her in a NORMAL hospital bed. She is still on her ventilator that is assisting her with breathing. We are hoping, with fingers crossed, that they will start taking her out of the medical induced sedation tomorrow and she can hopefully start some physical therapy to get her moving again.

Now with all of this being said, this would never have happened without the prayers and support that each and everyone of you have given on behalf of her. I can't begin to tell how much humility our family has felt with the love and support we have received. This journey is FAR from being over, but we've turned a corner!

WE LOVE YOU ALL!

~Ashley

Tuesday, October 27 Update on Carolyn's Condition

Nancy and I just talked to both the nurse and the doctor who are taking care of Carolyn. Again we appreciate your love and concern for us and especially for her.

The vital information for today includes:

1. During the last 24 hours she was on her back 1¾ hours or more three times. When we talked to them she had been on back for three hours.
2. All of her vital signs are staying stable. And they are very close to the same when she is on her back or on her tummy.
3. Her kidneys continue to function normally.
4. To date the culture is showing that there are no bacterial infections, the final report will be out later today.
5. The x-ray of lungs is showing the pneumonia is still there—but is SLOWLY disappearing on the lower part of one of the lungs.

All of these things are EVER SO SLOWLY moving Carolyn in a positive direction. We continue to hang onto these small gains with great hope. We love each of you and are appreciative of your prayers and thoughts.

With MUCH gratitude to you all,

Val and Nancy (Carolyn’s parents)

The Lesson of Larry & His Hairbrush

Dear Family & Friends,

My dad will give you an update on Carolyn's vitals, etc., but I just wanted to share more personal thoughts.

Sunday night I stayed with Carolyn and went home for rest yesterday afternoon. Upon getting ready to go to work early this morning, I called Ashley and asked her how Carolyn was doing. She said that she was fine, but had gone home because she was beyond exhausted. Ashley has not slept since she arrived on Saturday because of wanting to be with Carolyn.
Immediately my work clothes came off and my jeans and Texas Longhorn sweatshirt were on....I phoned my asst. principal and secretary and told them to hold down the fort, as I needed to continue to be with my sister. I stopped at Wal-mart on my way and decided to pick up a CD for Carolyn. My wonderful sister Karen had this great idea of having Carolyn listen to Disney music (she is the Disney connoisseur of the family) and there was Veggietale CD (yet she is the connoisseur of fine Veggietale tunes, as well -- she especially loves some guy named Larry, the Cucumber).

As soon as I arrived, I dropped all my stuff in the waiting room and scrubbed up to go see Carolyn -- all excited to have her listen to this Veggietale CD (my kids were Dora and Teletubby kids, so I am not so familiar with Veggietales)...though Carolyn is always singing about a hairbrush and Larry, who has no hair.

Upon arriving in Carolyn's room, Gena, one of her incredible nurses was there. She told me Carolyn had been on her back since about 7 am today (this is wonderful news)... I arrived about 9 am. I asked if Carolyn could still listen to music and she said, "Sure, the CD player is right here..." I put "The Veggietales Greatest Hits" on and though Carolyn is still in a comotose state, I know she was singing along with it....I could hear and see her...dancing and singing (with the broomstick that would pose as a microphone). This is our Carolina Rose Flower.... Yes, she has such a deep spiritual side to her and I know that is what is keeping her alive, amongst the prayers and fasting from throughout the world, but in the two hours I was with her this morning, I saw that cute, playful side....singing about Larry, the Cucumber (and his hairbrush -- though he has no hair).


One of the songs was about being grateful. I teared up as I thought about how Carolyn would be grateful and how grateful I am, personally for her remarkable progress to-date. Though Carolyn is where she is, I am truly grateful for the many blessings she has brought into my life. She is the "bonus baby" in our family (as she proudly calls herself) and she truly was and is that... she has brought so much light and sunshine into our family with her cute ways and sweet personality.

As we approach this Thanksgiving, I want to publically express my gratitude for a Loving Father in Heaven, who loves us so individually and knows us each by name. I don't know where I would be without the Gospel of Jesus Christ, but I do KNOW I am who I am today BECAUSE of the Gospel of Jesus Christ. I am grateful for the missionaries that found my ancestors and shared the Gospel with them. I am grateful for my ancestors, who through the Spirit, knew it was true and accepted the restored gospel into their lives. I am grateful for parents, like Nephi calls them, "Goodly Parents" that raised us with truth and light. I am grateful for 6 BEAUTIFUL sisters and 1 DASHINGLY HANDSOME brother, who though we have our differences at times, have been wonderful examples of kindness, meekness, and Christ-like love--moreso than I feel I deserve. I am grateful for my ultra-amazing husband and four beautiful children, who ARE God's hands in my life, especially through our most recent trials the last three months.

To each of you, I bear testimony, that I have no doubt that the Gospel of Jesus Christ is true and has been restored to the earth today. I am grateful for a 14 year old boy that endured persecution for 25 years of his life and was willing to do so REGARDLESS of the personal trials it would cause because it was and is true. I know that there is a living prphet of God that is on the earth today, President Thomas S. Monson, who leads and guides us and literally, "communes with Jehovah." I am grateful for the opportunity that Elaine (one of my sisters) and myself had to go to Israel and walk in the footsteps of the Savior. The Savior truly atoned for our sins and walks with us daily. As my sister Karen said and I testify that the days we are struggling, He literally breaths for us. Of these things, I bear my personal testimony. In the name of Jesus Christ, Amen.

~Heidi

Monday, October 26, 2009

Match Maker, Match Maker, Make Me A Match...

This just proves how much we love Carolyn and want her to be married and have the joys that come with it. In the waiting room they have a check in station with someone sitting there to make sure they are keeping track of how many go back at a time and that you know the person that is in ICU and aren't some random person off the street. A guy in his early to late twenties was sitting there studying. (I can only assume that he's a college students, duh) Karen starts talking to him to see if he's dating and takes the computer over to him to show him a picture of Carolyn. Then tonight our Mom goes up to him again and starts talking Carolyn up and how when she gets through this that they should meet. I thought I was going to roll on the floor laughing. This for two reasons. #1 We want Carolyn to get married, and #2 She is in a medical induced coma and my family is still trying to match her up.

Shows how much faith we have that she's going to pull through...this way she'll have a date when she gets up :)

WE LOVE YOU CAROLYN!!!!!

I just want to paint her toes..."The Office"

Something a little lighter...
The other night as several of my sisters & I went in & out of the room, we noticed Carolyn's toe nail polish had almost warn off. As I left my house yesterday, I hurried & grabbed a bottle of finger nail polish in a light tan color. As I gowned & went into her ICU room, I put it in my pocket. I pulled it out & asked the nurse if I could paint her toe nails. Ashley said, 'well what color", I said, this color, she responded emphatically "she'll hate that color, why didn't you bring something brighter, like hot pink." Well, you have to know that to GET to Carolyn's toes, I would have to bend WAY over & under this life support bed, & honestly almost have to lay upside down on my back to get too. Now this alone would have been a site it self...This bed that costs $2,000 a DAY to use. I asked the nurse if I could paint her toes. She just looked at me & said, "um, I don't know about that" I said, I promise I'll be careful." And then I realized, it wasn't so much about the logistics of painting her nails, but about the frightful, nightmarish possibility of SPILLING the nail polish on this MUCH COVETED BED, one of the only THREE in the state of Utah....can you imagine, this engineering master piece with dried nail polish spills on it, just so some crazy sisters could make themselves feel better, by painting their comatose sisters toes. funny huh? To me, that thought just struck me as funny...Silly ol' us. Silly ol' sisters, just wanting to doll her all up.
Another funny thing. Last night, I realized that Carolyn had missed last weeks episode of the "Office." So, I thought I would take it upon myself to catch her up. It was great, whatever I missed, Carolyn's night time respiratory nurse Jared (who, I was trying to set Carolyn up with, until he told me he was married with 3 kids), filled in, so funny. I bet she was laughing SO HARD inside her head. She is SO funny & loves so much to laugh... oh our Sweet Carolina, we can't WAIT to laugh with you again.
Karen

What is happening to Carolyn.......

This entry is written by Carolyn’s father. Her mother and I and the family have been overwhelmed by the outpouring of love for Carolyn. We appreciate all of your faith and prayers and we will continue to appreciate your faith, prayers and fasting in behalf of Carolyn. She is critically ill and it may be weeks before she recovers. We have been overwhelmed by how fast and how well social networking works. Responses to posts on this blogspot are from her friends from around the world. Comments on her Facebook wall are the same. She loved her friends not only in the US but in England and in Norway as well.

With this introduction I want to explain about her conditions so you have some appreciation for how sick she really is. She is currently in a medically induced coma. In this condition she is on a special bed called a Robo-bed by the Doctors. This bed allows her to lie on her tummy so her lungs are free to move more easily as Carolyn breathes. She is also on a venelator that is a large tube down her throat and esophagus that helps her to breathe and get enough oxygen. The Robo-bed is cylinder in shape and rocks very slowly back and forth. We hope to post a picture so you can see it. Periodically she is moved to her back. The goal is for her to lay and breathe the same amount of time on either her tummy or her back without any of her vital signs being affected. These vital signs include her oxygen absorption, blood pressure, pulse, temperature. The doctors do not know how long she will be on this bed. Some of the concerns they have include: is the pneumonia still damaging the lungs, is it a virus or a bacteria, if it is bacteria has it spread to the other organs (liver, kidneys), how inflamed are her lungs, etc.

Once she is taken out of the Robo-bed she will be kept in a comatose state until after the lungs are free from infection and are not inflamed. At this point she will be removed from the coma. Once out of the coma she will be extremely weak and will still need to be nourished through a tube until she is able to eat solid foods and walk on her own.

During the time she is comatose there is a risk of other complications occurring that could worsen her condition. Given all of these variables the doctors cannot predict how long she will be on the Robo-bed, once out of the bed how long she will kept comatose or how long her recovery will be after she is removed from the comatose. This whole process could be days, weeks or months. A lot of it hinges primarily on how well and how fast she heals once the infection is gone. The one thing I do know is that she will be on her computer and cell phone wanting to thank each of you for your love and concern.

I hope this helps you understand how critically ill Carolyn is and why she will continue to need your continued faith and prayers for perhaps weeks. We will keep you informed on progress as we receive it from the doctors. It will be the same very general terms that we are receiving. It is hard to remember that they are looking for very small gains.

We have been told that the team of doctors, respiratory specialists and nurses working on her are perhaps among the best pulmonary teams in the world – for that we are extremely grateful. We are, again, grateful for the love and concern you have for our daughter – we love each of you for this.

Val and Nancy

"I just wanted to see her face"

2:22 pm
I was just in with Carolyn. They had her on her back for a few minutes. I could see her face, her beautiful, VERY swollen face. While there, Phil walked in (Phil is Carolyn’s primary respiratory therapist). He said, I just wanted to see her face.” I noticed that Phil wasn’t in his hospital scrubs, but in jeans & a regular shirt. I asked Phil if it was his day off, sure enough, it IS Phil’s day off. He came in just because he wanted to see her face”. I’m sure Phil could have been anywhere, doing the laundry list of things I’m sure he needed to do today. I realized that at some time, some hour, some minute, that Phil & his staff quit looking at Carolyn as a lifeless body, just laying there & started looking at her as a person with a name, a young woman with loves & talents, a life outside of here, as a daughter of God. That Carolyn’s “care staff” really does care, they genuinely care for her, in every sense of the word. That they aren’t just here to collect a pay check, but also because they want to save lives, to save Carolyn’s life. This brings me & my family great comfort. She is in the BEST place she could be! We are SO thankful for Phil & the nursing staff!
As you pray for Carolyn & my family, please also include these people that are caring for Carolyn. They need our prayers too.
love to all,
Karen

Almost noon and here we are....

I wish I could say that she is improving and that everything is progressing like we would like it to. I wish the doctor's could give us a definite and say that in a few days, this will all be okay. That she'll be off life support by X day and that everything is going to be just fine. At this point we hear the same things; she's stable and that's all they can tell us.

As a family we are frustrated, that we can't have definite answers, but are grateful that she is at least stable. The scripture Proverbs 3:5-6 keeps running through my mind.

"Trust in the Lord with all thine heart and lean not unto thy own understanding. In all thy ways acknowledge him and he shall direct thy path."

We are all tired; emotionally, physically, and mentally. We hear the prayers that are given on behalf of Carolyn and our family and are humbled by the gratitude that has been bestowed on our family. They tell us that Carolyn can't hear us, but we disagree. We know she desperately wants to be able to converse with us.

Please continue to post your comments and thoughts we believe it is imperative in helping her come back to us. They are uplifting to us and keep us going. We love you all and again are so thankful for all of the love and support that we are getting all over the world.

~Ashley

Update on Carolyn Overnight -- Monday Morning @ 6:00 am

Family,

I have been with Carolyn overnight. Because she was able to sustain herself so long on her back yesterday, it set her back a little tonight and she was only able to stay on her back for about 20 minutes. I was privileged to help the nurse give her a sponge bath and change her gown. She actually breathed a few minutes at 100% on her own. She is "wiggling" around and trying to get her arms out of the contraption, so they have given her a little more sedation, but are monitoring it carefully, as they don't want her to have too much and then have to rely on the life support pump to keep her alive completely. Her oxygen saturation level remains at about 85, which is relatively good. The doctor will be in within a few hours to give us more updates.

I have read the comments from others on the blog....keep writing them and adding your thoughts. We want to print it out for Carolyn to have when she awakens from this deep sleep. I am touched by the outpouring of love, as is our whole family. Carolyn was one who just knew how to "touch" people by just being herself. What a remarkable and amazing gift.

We will continue to keep you up-to-date on her progress. We love her so much and want is what is best for her right now.

~Heidi

Sunday, October 25, 2009

What a gift today is......
after dressing in a sterile gown , mask & gloves I went into Carolyn's ICU room. I was there several times yesterday, but today was different. I got to be there with her alone. Just me and her. She, strapped down completely, tubes everywhere, unable to only see her back, a couple of her toes, & her hair, laying silent, rotating on the respitory life support bed, with only the noise of the machine, slowly, slowly breath by breath, breathing for her. This monster of a bed encompassing her entire being.
I found a short little stool that sat close to the ground. The one the doctors & nurses use to climb high enough over the bed to change the myriad of tubes & lines waving in & out of her precious body. As I sat so low to the ground I realized, that if I turned my head just right, I could see her eyes, her eyes closed, almost in reverance it seemed.
I tried to get as close as I could so she could hear me talking to her from behind my mask. I knew, even though in this induced coma, she would hear me, hear my heart, the deepest parts of my heart.
"Carolyn, it's me Karen, I know you can hear me." I talked to her about my own sadnesses, about my trials, about my Gethsemane, the one that has robbed me of so much. My MS, that has taken my legs, my voice to sing & my energy. I talked to her, sobbing in my own sorrow of not understanding my own trials & difficulties, & now, not understanding this, her, here laying here, lifeless, part of me thinking that she would answer me... "Where had time gone" I said to her, it was only yesterday we had your 4th birthday party. Mom & Dad had taken a 3 week long, well deserved trip to Australia & New Zealand. I was almost 21 and had been left in her charge. I would share the responsibility of her care with several of my other sisters. "What do you want for your birthday dinner Carolyn?" I said. "Chicken & wice," she said; it was her FAVORITE. Mom's chicken & rice. She had a hard time with her r's, so to her, it was "wice." I took Ashley, then about 7 or 8 years old, to Macfrugals to get $20 worth of fun little girl toys, things she would love. We set the table in pink, dressed her in one of her favorite Sunday dresses, put the carefully wrapped gifts in the center of the table & the party began. She was 4, she was perfect. Her perfect, pale little face, squinting eye smile, SHE loved her party.
Today at church we sang a hymn called "I Know That My Redeemer Lives," a hymn I love. As we sang, we got to a phrase I had sung 100s of times."...He lives to give us daily breath..." My heart jumped, "He LIVES to give us daily breath."
It is HIS breath, breathing, almost tangible, keeping her alive. I bowed my head, silently thanking my Heavenly Father for the breath of His son Jesus Christ.
In Alma 7:11-13 (for those of you not of our faith, this is in the Book of Mormon, a companion to the Bible, another testimony of Jesus Christ):

"And He shall go forth, suffering pains and afflictions & temptations of every kind, and this that the word might be fullfilled which saith He will take upon Him the pains and sicknesses of His people. He will take upon Him death, that He may loose the bands of death which bind His people and He will take upon him their infirmities, tht his bowels may be filled with mercy, according to the flesh , that he may know according to the flesh how to succor his people according to their infirmities.
13 Now the Spirit knoweth all things, nevertheless the Son of God suffereth sccording to the flesh that he might take upon him the sins of my people.....

I think many of us, as we think of the atonement & sacrifice of Jesus Christ, usually think that it was only our sins, that on that most sacred of nights in Gethsemane & on the cross, He suffered for.
No, not just that.
He suffered "ALL THINGS." He suffered & felt the sorrow & sadness of my parents, as they watch helplessly, wondering what the Lords plan is for their daughter, to live, or to return to Him. They,trying to understand & wrap their minds around their little girl, their precious little girl, laying silently. Of my father, waiting by the phone at home, he with his cancer, recovering from his recent surgery to perge his body of the tumors. Both mom & dad exhaused in worry, trying to be brave & have faith.
He suffered the doctors & nurses as they give every thing they can to save her life, they being tired from a long work day.
He suffered your & my sadnesses & disapointments, that at some or many times in all of our lifes we have & feel.
He suffered sweet Carolyn, waiting to wake up, with a new body to go forward in her life, if it be His will.
He suffered ALL of this & more.....that He may "succor" His people. You & me.
To "succor", to wrap in hope, in faith, in knowing that we are not alone. To comfort us, to boy us, to lift us, to carry us, when the load is too hard for us to carry on our own.
He has succored my sweet parents.
He has succored me, time & time again, I can not live with out His succoring.
He will succor all of us if he will accept His succoring.
He has suffered for Carolyn, He will succor Carolyn. I will forever be indebted to Carolyn, for in her unimaginable suffering, my life & own trials have found greater purpose.
I have a living and growing testimony of Jesus Christ, He does live to give us daily breath. He lives, I KNOW, that my Redeemer lives.
This I say, with all that is me, as an integral part of who I am, of who Carolyn is, of who my parents are.
In the name of Jesus Christ. Amen

Keep the Faith

Carolyn,
It is amazing to think about all of the faith and prayers that are being offered in your behalf. There are so many people who have fasted for you today, and the prayers being offered up in your behalf are many. This is not only a demonstration of faith and the Gospel, but more importantly of the love that so many people have for you. Your life and your spirit have touched the lives of so many people including me. I can honestly say that my life has been made better because of you. I am glad to call you my sister-in-law and my friend. You are part of an amazing family that loves you very much, and I am blessed to be a part of that family as well. You are in our hearts and we love you very much. The spirit of the Lord is with you. You have kept the faith and are one of his blessed daughters. We are confident in the knowledge of the Gospel and that the Saviour will bless your life at this time with blessings unimaginable.

Love,
Shaun, the biggest brother-in-law.

Thoughts & Memories of Carolyn...

I was able to see Carolyn yesterday and she is a fighter. Judds are all fighters. There were two distinct events that were brought back to me because of Carolyn's state right now:

1. Our youngest daughter, Kaia, was born 10 weeks early. The first 72 hours, like Carolyn would determine if she lived or died. Kaia is now 8 years old and in the NICU of the hospital, the first few weeks of her life, she was nicknamed by the nurses, "Spitfire" because of her will to live. Carolyn is a spitfire in her own way and is a fighter.

2. The day Carolyn was born...she was born the day before my 19th birthday. I will never forget seeing her for the first time and thinking, "She could be mine." Since then, in her own way, she has been like my own, but a special sister in a special way.

The last few days, I have sensed the presence of angels, especially in Carolyn's room. I know angels are real because of experiences I have had, especially at Kaia's birth. Carolyn is on earth for a reason. She is loved by so many, including my little family.

This message is to Carolina "Rose Flower KiKi" Judd (the name she gave herself when she was little)....I love you!!! Don't give up now. You are loved by so many and your testimony of the Gospel of Jesus Christ is so evident in the way you live your life. Remember who you are... you are truly a Daughter of God.... He loves you!

Tonight is my opportunity to stay with Carolyn and I am looking forward to the time I get to spend with her and watching her progress towards "wellness." I love you Carolina Rose Flower!!!

~Heidi, Sister #1, Sibling #2

24 hours in....

I have had the privilege of being here with Carolyn at the hospital all night. I have gone in and checked on her several times. The staff has been great! Carolyn's stats look good and she is responding well to feedings.

Karen, Elaine, Janae, myself, our Mother and our Dad (via cell phone) met with one of the respiratory therapists last night. my parents have decided to have Carolyn be a part of a study called "The Eden Study." One of the other Judd Girls that attended, will blog about what exactly that is and how it will help others along with the meeting with the respiratory therapist.


We will also be getting a timeline out of how this all has started to where we are now.


Please continue to pray for our sweet sister and daughter! We feel each of your love and prayers!

~Ashley

Saturday, October 24, 2009

Here is what's going on....

This blog is created to journal the journey of what my sweet sister, Carolyn Jerusha Judd is going through, for posterity and for those who want to keep current with her condition. Carolyn has been struggling with bronchitis. The bronchitis worsened and became pneumonia. Last week we thought the pneumonia was under control and all of a sudden everything worsened. Carolyn was tested and found positive for the H1N1 virus.

Carolyn has been staying with my parents while she has been sick. Late yesterday afternoon my mother took Carolyn to the emergency room at American Fork Hospital, as she was having problems breathing. She was admitted to the hospital and soon to ICU. Carolyn had 24 observation and in the morning the doctors decided that she wasn't able to breathe on her own, nor did they have the equipment care for her properly. She was brought to Utah Regional Medical Center where she was put on a ventilator to help her breathe.

At this point, we were not sure how much time she had and/or id she was going to make it. We as a family have come together. Ashley (me) has flown up from Phoenix, and Janae will be here in a couple hours from Colorado. Mckay our brother, is waiting a couple days to see how things go.

There are 140 special beds that are made for people who are in critical respiratory problems. This bed is made to rotate so that the fluid in the persons system is moving through out the body and the fluid won't stay dormant. There are 3 of these special beds in Utah. Carolyn was BLESSED to get the last of the 3 beds. This bed is saving her life. Since she has been in her stats have gone up. This bed is what's keeping her alive.

I will write more later.